Saturday, April 24, 2010

Our New Abnormal

Wednesday morning, J bundled up a very sleepy Isaiah and drove him up to D.C. for the second sedated MRI of his brain.

His first MRI was in Germany 5 years ago. The results were interpreted as "normal" findings--with "slight scarring" around the ventricles in his brain. His neurologist at the time couldn't attribute most of Zay's symptoms or delays to the test results.

And so began the testing-him-for-everything-under-the sun process. "Normal", "negative" blood results time and time again....years of no answers for his condition. Nothing to explain the Cerebral Palsy he was finally diagnosed with in 2008.

His new neurologist ordered a fresh MRI earlier this month and Isaiah had the scan this week. Dr. S called us yesterday with the results: abnormal findings.


Isaiah's brain has pockets of fluid ~ cysts ~ around the ventricles. And without even looking at the first MRI images, I know that is miles from "slight scarring" that was noted when he was baby. Dr. S won't have access to the old MRI until Monday, but he won't be back in the office until Thursday. So we have to wait. Wait and see if the changes are significant. To see if the cysts can help explain the damage to Isaiah's brain and his subsequent disabilities. The mystery of the enigma who is my son could be answered.

This is the same son who taught me the true meaning of faith, patience and determination...who learned how to crawl at 3 and walk at 5. The same little boy who didn't let 3 steps keep him out of the kitchen from the den.

He is happy.

Regardless of the implications of the test, Isaiah is a blessing from God. And God doesn't make any mistakes.

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